Me: (in a mood of all moods) So, why did I get this surgery anyway?
Badger: Because you’d die without it.
When in pain: don’t do stuff.
When not in pain: do stuff.
Not only can I find no humor in it yet, I can’t even really write about the ileostomy experience.
If you read cheery accounts of people living with them on line, keep in mind that I hate them all.
Me: So, am I healed up yet?
Radiologist (brightly): Oh no, you’ve got a ways to go!
Every night between 8-10, I get pained, squirrely, restless and am just an all-out mess. This doesn’t happen in the mornings. I take meds at 10 AM and 10 PM.
Why does this happen?
Me: So they transferred you to the step-down out of ICU!
Mom: Yeah, they probably needed the bed.
Mom’s a bit further out of the woods right now, but she still needs rehab to get back on her feet.
Mom: grumble grumble cough (through oxygen mask)
Mom’s not well right now. Less well than me. So, I’ll likely be posting a bit less. I’m exhausted.
I hope the surgery went well. Post an update when you can.
I still can’t seem to make my ileostomy funny.
- 10/31/11: Surgery to remove tumor margins and temporarily resect colon to allow reconnection later. Surgery takes eight hours.
- Spent 5 days in ICU due in part to tachycardia and excessive blood loss. Took 2 blood transfusions. Discharged 3 days later with temporary ileostomy. Epic trouble in managing same (decreased but continuing).
- At home, in increasing pain. Have not eaten or drank sufficient amounts in weeks.
- Readmitted to the hospital with severe dehydration and pain.
- After several days, sent to radiology for ‘leak study.’ Not informed that “leak study” involves the unexpected and rapid shooting of freezing cold liquids in the area of study. No hilarity ensues.
- Abscess discovered and drains installed. Cannot sleep on front or back.
- Discharged to physical rehab home. Am youngest resident by far. Given PT, OT and much better food. Shared bathroom presents amusing issues.
- Drain removed by surgeon. Pain meds increased. Working the PT/OT. Figuring out the cable channels.
- 12/23/11: Discharged home. Hasty Christmas Eve spent with dad and stepmother.
- 12/31/11: Pleasant New Year’s Eve, after time spent missing friends.
- Today: Insomnia and thirst persist. Frustration with ostomy continues; trying to research solutions and/or coping strategies. Impatient with long recovery time shared with surgeon who doesn’t deny that this is what happens after (see above). Still on buckets of pain meds. Reflecting on all of the above may or may not be helpful. Shrink appointment on Monday much needed.
Informercials! Off to drift off to sleep to Proactiv ads!
How I spent it:
Baked ziti (made by me) and intensely buttery garlic bread (made by Badger)
Watching the ball drop (heh heh) on TV. Highlight - Lady Gaga dancing with Mayor Bloomberg. I heart NYC.
So, so glad to be alive.
Happy New Year, all. Marching into 2012 with increased hope and decreased intestines.